- WHAT DOES CFS MEAN ON INSTAGRAM HOW TO
- WHAT DOES CFS MEAN ON INSTAGRAM FULL
- WHAT DOES CFS MEAN ON INSTAGRAM FREE
My body tells me it has no energy left when I have to make a real effort to do something. I can feel tired, groggy and lethargic most of the time, but I know that if I move around gently (or employ my mind) in a relaxed, effortless manner I don’t get any worse. The exhaustion I aim to avoid is that feeling of not being able to do something without a sense of exertion.
As most of us wake up feeling pretty exhausted, this is a difficult one to call. One symptom that we maybe should aim to eradicate when looking for our sustainable baseline is exhaustion. The aim would be to cut down your activity level to match those days when your energy level didn’t drop much over the day or from one day to the next. One way of exploring your baseline of sustainable activity is to record your daily activity level hour by hour (including intensity of effort for each activity) over a period of a couple of weeks, at the same time as monitoring your energy level. What can you do without making yourself worse? And how can you include activities that might help get you better? Instead of aiming for symptom free, I think it is far more important to aim for sustainability. Whilst rest might give the immune system a bit of a boost, a healthy diet, some gentle circulation-promoting movement and a regular body-clock-setting routine may offer more to a disrupted immune system than simple rest. Practices that moderate the autonomic nervous system might be more effective at minimising muscle pain than the frustration involved in total rest.Īnother symptom that might not respond sufficiently to rest is the flu like pain that may result from a high level of cytokines produced by an inappropriate immune response. If you constantly suffer from stiff and sore muscles resting may not be enough to reduce this symptom. Under-activity of the parasympathetic nervous system can mean that the message to let go just doesn’t get through. Even at rest, many people with ME/CFS are not able to easily relax their muscles. I believe that it isn’t just caused by actively doing too much, but it’s also caused by the nervous system not switching the muscles off.
Rest alone does not cure this illness and will not rid you of all your symptoms.
WHAT DOES CFS MEAN ON INSTAGRAM FREE
Sustainable vs Symptom-Free Baselineįor many sufferers of ME/CFS finding a symptom free baseline of activity is just unrealistic. If you can work out what you can do on an average day without making yourself worse, on a better day you can perhaps do a little bit more and you can prioritise more rest on a not-so-good day. For me pacing also means listening and responding to your body’s changing energy level. The idea is that once you have learned to pace at your baseline you will be able to gradually increase activity little by little. Pacing is a strategy that involves finding a baseline of ‘symptom free’ or ‘sustainable’ activity and then breaking the activity periods within that normal activity range into smaller parcels with more frequent rests. Our worries, desires and emotions can all get in the way of our awareness of our energy level or our willingness to respond to that awareness. Our energy levels change on a day-to-day basis.
Living within your energy envelope isn’t that easy though. Take all the pressures you can off your struggling bodily systems and hopefully, your body will eventually find its balance again.
WHAT DOES CFS MEAN ON INSTAGRAM FULL
I believe I regained my full health after my first bout of this illness mainly because I learned how not to use too much energy. Saving some of that energy for the body to work on healing can also help bring about substantial improvements. Making sure that we only use the energy that is easily available to us is the most reliable way of stabilising our condition.
WHAT DOES CFS MEAN ON INSTAGRAM HOW TO
Finding a baseline of sustainable activity is an important strategy for learning how to live within your ‘energy envelope’.
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